Tuesday, August 26, 2008
Isn't she just perfect? I am head over heels in love with this little girl.
I am still working on her birth story and a few other posts, but they are coming along slowly. I work in five minute bursts when things are quiet (which is almost never) and when I'm not busy just marveling at her.
Her platelets are coming up but very slowly. Her h.ematologist is confident that she is going in the right direction, but has cautioned us that it may take over a month for her to get up to normal levels. In the meantime, we have to continue to monitor her carefully. This morning she was up over 50,000, which is a relief as that is really the safe cut-off were she to need surgery for some reason.
We see a new p.ediatric c.ardiologist next Tuesday. What we know right now is she has at least 2 small muscular defects. While small is good, her defects have the hemodynamic significance of a moderate defect. We are hoping the cardiologist will be able to give us a better prediction of what this means for her when he sees her next week. In the meantime, we are just enjoying having her home and trying to live in the moment.