This will just be a quick update as I am currently too overwhelmed to write the posts I really want and need to write.
I was discharged from the hospital Sunday and Eden has been in the N.ICU. Once again, I left the hospital without my baby and it has been very traumatic. Her platelets continued to drop and while she has been doing well clinically, it obviously has had her doctors concerned. I am pleased to announce this morning's count was almost identical to yesterday's. We are hopeful that this means she has cleared my antibodies from her system and her counts will start increasing. Once that happens, she should not be affected by platelets issues ever again.
There is, however, another concern. She has been diagnosed with a v.entricular s.eptal defect in her heart. Again, clinically, she is doing well and I am praying she will be one of the ones who is able to outgrow the issue without intervention. She will need to be monitored carefully over the next weeks and months. Hopefully, I will get more information after we consult with the ped.iatric cardiologist.
There is so much more to talk about here. But right now the words just don't come. I still haven't exhaled. I wonder if I ever will.